FRIDAYS FOR FORCE (Facing Our Risk of Cancer Empowered): About Us

FORCE (Facing Our Risk of Cancer Empowered): About Us:



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Just browsing through the FORCE: Facing Our Risk of Cancer Empowered Website and was reminded of a very important segment that is offered, The Patient Experience Tool.

Ask yourself, how many times do you ask about a good book to read or which restaurant to try? Always asking for referrals from family and for important and inconsequential matters? Of course you do! So what would make choosing a Breast or Plastic Surgeon, hospital or genetics counselor any different?

This service is provided for and by volunteers and members of FORCE. Their personal opinions are there for anyone to take with them in helping to make an informed decision about their next step in dealing with Hereditary Breast and Ovarian Cancers. I myself have also provided information and very glad to share through my blog as well:

Fox Chase Cancer Center and Margaret Dyson/FRAP (Family Risk Assessment Program) is where I went for my BRCA testing (tested positive for BRCA2 in 1996) with Dr. Mary Daly.

(http://goo.gl/yDN6j for more info)

Abington Memorial Hospital (AMH) is my choice for surgery, especially since my doctors are on staff there. (http://goo.gl/YppSz)

Dr. Christopher Pezzi, also at AMH, Oncologic Surgeon, also a friend of mine. When he suggested surgery, I listened up since I knew he really had my best interest at heart. Moreover, he is a brilliant surgeon and has a wonderful reputation. (http://goo.gl/lgLQu)

Dr. Brian Buinewicz, Chief of Plastic Surgery at AMH. I cannot say enough about Dr. B! I had a rough journey with lots of setbacks and he and his staff were supportive and professional. (http://goo.gl/MduAR)

Betty Cummings, RN: She is the light of AMH in connection with Breast Cancer Support. She appeared at my hospital room door one morning and reached out to me with advice and help. Her information can be found on this url: http://goo.gl/f1y0B. Also on this page are links to "Look Good Feel Better" program by American Cancer Society, Gilda's Club at AMH and plenty of other information.

Remember, all these recommendations are totally subjective. Please! Remember this caveat for me and especially FORCE:

This website and the Registry service are for individual educational use only. Nothing on this site is or should be considered, or used as a substitute for, medical advice, diagnosis, treatment, or other information that could only be obtained by a face to face interview with a health care service provider. Any listing of a health care service provider’s information and/or views expressed in connection with submission of such information is solely the view of the Submitter and does not reflect the position of FORCE nor is anything on this website to be deemed an endorsement of any such doctor or health care service provider by FORCE. Use of any such doctor or health care service provider is engaged in by you at your own risk.

Love and hugs,


Beth

Five Movie - Official Site - myLifetime.com

Five Movie - Official Site - myLifetime.com:

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I am watching the movie, "Five". I am on the third segment as I write this. As usual, I am crying. But I wonder if I am crying over the characters on the small screen. Am I crying over the loss of my father who passed away from breast cancer in 1989? Am I crying over the battles fought and won and lost by my friends? Some are more than likely happy tears for those that have survived chemo, radiation, surgeries and pain but are still here to tell their own tales.

There are times that I wonder if breast cancer is just lurking under the surface. I am at the same age my father was battling his breast cancer. So are the surgeries and chemo-prevention enough to chase away that genetic and hereditary predisposition? I am so full of doubts. I find myself volunteering for anything I can do with FORCE: Facing Our Risk of Cancer Empowered. This is in some way, a reaction to my fears. FORCE helped me through the worst of the times when I had my mastectomies. So giving back is what I need to do.

I also find myself very short-tempered. I erupt, mildly at times and others when lava seems to flow venomously out of my head out loud and also on paper. I have this dread lurking. I should be celebrating the fact I am here and alive and have a beautiful family. And one of my friends from FORCE, Caryn, told me once I am feeling survivor guilt. It is beginning to really invade my thoughts on a regular basis.

Survivors have this feeling of waiting for the other shoe to drop, waiting for breast cancer to rear its ugly head as a metastasis in another part of their body. And it is deemed OK. But is it OK for someone who "dodged the bullet" to wonder if it really is not going to happen? It has struck in a straight line from my paternal great-grandmother, grandmother and then my father. Every one of my family members who opted to be tested for the BRCA gene mutation, has tested positive. It seems to run very strong in our family, even one of my dad's cousins died from ovarian cancer. Our chances are higher than the average person's of developing cancer. The average woman's chance of developing breast cancer is one in 8. As my son just asked me, "Does that mean if you lined up 64 women, 8 of them would have cancer?" More than likely yes.

Because I carry the BRCA2 genetic mutation, my son has a 50% chance he will carry it too. He is now 18 and can make the choice himself to test or not. He has indicated that he wants to. But before he does, I will make sure he has genetic counseling at Fox Chase Cancer Center which is where we were all tested at the Dyson Family Risk Assessment Program (FRAP). I am the only female in my generation and my niece is the only one in hers. She is way too young to be tested yet. I feel guilt over this as well, that I may have passed the gene on to my son and perhaps my brother on to his children.

As I ramble on, I am reminded of the last line of the tile on the wall in the last segment, "Hope for the future." This needs to slowly replace my doubts and concerns. I will never stop helping to Spread the Word and Save a Life through FORCE. Men and women both need to be aware of their family history. Get genetic counseling to see whether or not there is a need for testing and if there is, listen to what they have to say. Better yet, take your significant other or friend to help absorb what you hear. Because like in the "Lily" segment of the movie, sometimes you don't hear the doctor and you need that support to help you! And remember FORCE is here too, www.facingourrisk.org!

Thank you to the directors and producers who made this movie with taste and warmth!

The wall as shown in the last segment, "Pearl".

Love and hugs,

Beth

22 Years Later

February 19, 1989. It was a cold and very rainy day. I truly believed that the angels up above were crying along with us as our family buried my father. His death certificate stated that he died from Hepatic failure. His liver could not hold out against all of the chemicals pumped in over the course of chemotherapy he received during his five year bout with breast cancer.

A man with breast cancer? Yes, my father was diagnosed with breast cancer. What was really amazing medically was that in the year 1984, the oncologist my father saw had four other men with breast cancer at our small (in those years) local hospital. Every week, my dad had an infusion of chemo as well as taking tamoxifen. Even though the doctor told my parents that dad was only expected to live for 6 months, he fought valiantly for 10 times that prediction.

Today, he would have received dose dense chemotherapy and maybe even radiation. What he went through seems so antiquated compared to today's therapies. Due to his bout with breast cancer, I was tested at Fox Chase Cancer Center and routinely participate in the Margaret Dyson Family Risk Assessment Center (now known as the Risk Assessment Program, http://www.fccc.edu/prevention/riskAssessment/staff.html). My father's frozen tissue sample from his original pathology and my blood samples determined that we both carried the BRCA2 genetic mutation. In 1996 when I found out this information, I received concise and informative genetic counseling as do all participants in the RAP at FCCC. We mapped out a plan of action and so far, as I have followed it, I am cancer-free even having discovered that I was at Stage 0 with DCIS at the time of my prophylactic bilateral mastectomy.

My father's death was a horrible experience but through it and less than 10 years later, I was able to avoid what my breast surgeon had told me was a certain outcome; it was only a matter of time before breast cancer would rear its ugly head within my body.

So as I recite the Kaddish prayer during my dad's Yahrzeit, I miss him very much and probably spend at least a week being miserable and unhappy at the loss of a most wonderful man, father, son, uncle and cousin. However, his legacy genetically has helped those he left behind with a knowledge that allows us to overcome the high risk of disease that has plagued the family through several generations.

If not for Dr. Daly at FCCC and the support and information at FORCE, Facing Our Risk of Cancer Empowered (www.facingourrisk.org) I may not even had gotten to age 51 and sitting here writing about genetics and breast cancer! Thank you Dadddy. Though you have missed meeting your grandchildren and other new family members, because of your sacrifice and love, we remember you at this yearly celebration of your life.

Love and special hugs,
Beth